Monday, May 6, 2019

Here we go again with the celiac thing

BIKE COMMUTE 2 miles from Fo Pa

I had a 7am appt with Emma in West Co for the nutrition consult. What I thought would be a 1-2 visit thing turning into a regular event. Which tells me I'm not making progress?

Anyway, I missed my ride in TGP with BE for this. So I'd better make it worth it.

My goals from before included getting in more solid food (I was lightly pureeing most foods), working on balanced meals, and getting to where I'm not vomiting. My bloody red right eye started the conversation off....and it went from there.

We reviewed my usual day of foods: egg whites, chicken, yogurt/milk as protein; carrots, zucchini, sometimes beets and broccoli for veg; oranges, berries, bananas for fruit; avocado and olive oil for fats; banana and potato for training carbs. I didn't get into the M foods. They don't exist in this reality.

She noted no grains. And again produced the Whole Grains Council printout (they're not biased, right?) and after crossing out all the corn and wheat I'm left with millet, sorghum, amaranth, rice, and teff. Since the last visit I did try oats (M), millet (is OK), sorghum (yuck), and rice (blech). I just don't have it for grains, I don't feel good eating them and I don't even want to eat them. But she presses them because they contain vitamins and minerals in their natural form, better for absorption

She seemed to work in a pattern (a nice pattern tho) of making an observation, then finding a positive on which to build. "I'm happy to see your getting 1-2 servings of dairy...", "It's good that your getting a variety of colors...", but these always led into a suggestion of what more I needed to do. Is OK, is why i'm here, but I don't feel like I'm getting anywhere on it.

And after discussing my symptoms of vomiting, diarrhea, stomach pains, previous history, prior testing, she brought up that I'm probably undiagnosed celiac. She had some good points. Recently in a family visit I tried to eat french fries. By the time I was home I felt sick. She said the fries were probably fried in oil that was contaminated. I said I'm most often sicker when I travel or I have new foods in the house, she said the family's bread and snacks could be a contamination.

Do I believe this? Or am I in denial about it? I'm not going out for more testing, that's for sure. I'm done with that and don't want it in my medical record. I have enough 'pre-existing conditions' already.

But I think on it, and look at the cross-reactivity food list: dairy, oats, milk chocolate, corn, millet, rice. Do I believe the cross reactivity theory? Not sure, I've read on it but each side just comes off defensive and biases. The idea is that people with anti-gluten antibodies have cross reactivity of the antigens. But I don't test positive for anti-gluten antibodies, but I don't eat gluten to know if I produce them. Still I think that's a fail. Then the theory is that those foods are just common allergens and people with gut issues will react to them. Well I know oats, 2+ pieces of chocolate, dairy, corn are all bad on me. But....... anyway.....

This weighed on my mind all day. What to do about it? Is my current situation just my gut re-balancing after the veg*n experiment? That ended in March, here it's May. April was just a nutritional wasteland. I didn't pay attention. I'm eating many many new foods, salad bars, french fry type stuff, eating foods without really paying too much to the labels. Am I just recovering from veg*n? Am I must mental? Was April a bad example? Or do I need to knuckle down and get more careful?

Ugh.


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