Wednesday, May 26, 2021

AIP start, Eclipse, M, Surgery Tomorrow

Today I start AIP, as best I can with a few unknowns (like I need to look up coffee...nope) and trying to get out of the M habit. Last night cocoflour with sweet potato and molasses. Prior night cassaflour with ghee. 

I didn't even enjoy it. 

I woke up at 5am to see if I could find the moon, full and in partial eclipse. It was setting around 5:30-5:45am, and Soulard is trees and houses. I walked to I-55, found the Syndey overpass, but either the other buildings or the light clouds had it covered. Wonderful walk, so quiet calm and warm. 

My surgery is tomorrow. I thought I'd have a lot more to say right now, but at the moment I'm kinda dead-head. I'm hesitant to have the surgery (I'm walking OK) but I have a lot of clicks and sticks, minor pains and aches, they're only going to get worse. I'm walking all I can today. Next I walk to the library and maybe Whole Foods, so I can rebuy the foods I bought last week for M. Are they safe to buy? I dunno, I'm still thinking about it. 

I'll be back after surgery!

Friday, May 21, 2021

AIP research; M fail

Yesterday I met EW and BE in the morning at the 6am run, saw them before and after their run. Ugh, it was hard, it felt like I was saying a sort of goodbye-but-not-really and I miss them!

I also haven't reconnected with other friends from STL yet, and the thought crosses my mind everyday. TH, TB, TV, LC, others. I know they're just a text away, but I feel like I'm ........   wrong somehow.....I'm not sure how to explain it. I feel like I'm always the one needing help or asking for something, and to call them up and say "hey I'm going into surgery" and "hey I'm leaving STL" just seems like yet another "well TJ needs something" or "TJ got injured again" or "TJ can't take care of herself". So instead I just don't reach out at all? 

I researched more AIP, and started the slide into it. I made a list of things I regularly eat and some replacement ideas. I'm still eating: eggs, coffee, tomato, rice, (oats already out), mustard, pepper, ketchup, raspberry dressing, ghee,and veg oils.

I've purchased cassava flour, coconut butter, blackstrap molasses, coconut flour, palm oil (and JUST GUESS what I did with it at first). That takes care of carbs and oils. I bought beef and chicken last night for the eggs. I'm doing tea and fruit-sparking water for coffee. I'm doing cucumbers for tomatoes and peppers on salads. GHEE? I thought that would be OK so I'm not sure on that one. 

Things I need to try: apples and sweet potatoes. The apples can stand in for honey and maple syrup in recipes. The sweet potatoes  can replace the oats and rice. 

One thing that will make life difficult is the no-processed-food-chemical rule -- citric acid, colors and flavors, spices, gums and thickeners, etc. This will really limit my shopping, how seriously to take this? 

And on that thought, what is going to by my metric of success? At first, my primary goal is to get through the surgery with low inflammation and fast healing. After that, the neuro symptoms. But they are come and go, I need to think more on this.  

So. When to start? Well we have the kids this weekend, and it's hard challenging to do then because LA likes to eat out, and eating out will be a challenge with this. I'm not going cold turkey, I just need to make this weekend work. 

But finishing the thought, there's an partial lunar eclipse next Tuesday the 26th at...starts at 3:47am and maxes out at 5:42am then falls off at the horizon. 

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Yesterday in Aldi I skipped the RC- so happy with myself. But on the way out got the Chex. And new as soon as I had it, that I should put it back. Thought about it, but thought the kids and the dog could enjoy too. FAIL. So bag is gone, and so is the AirBNB bag of azuc that shared with the chex. 

Again. Time back to zero. 

Tuesday, May 18, 2021

No more neurology for now, but what about AIP?

NOTHING GAWD I HATE THIS

Well I could include the 5 minutes of planks work I've been doing in the morning. Does that count? 

My headache, strong fatigue, and total braindeadedness are much better. Stopping caffeine had a role in that, I doubted that I was getting any benefit from caffeine since I never felt a perk from it. But I will throw it in the ring as a contributor to my anxiety and nerves, and in the ring as a contributor to the weekends mental and energy failures.

That's not to say I feel normal yet. Still a mild headache, still a flat mood, still no strong emotions of happy or anything. Even when LA is here (he's driven back from FLW twice!) I feel the same disconnection to him as I do to my current life. It's frustrating - to know that I'm feeling flat and to know it's not right, yet to still feel it. 

The neurological follow up was today. LA wanted more details on the future plan and what-next. I really didn't care. So when he asked what I was interested in knowing (LA typed a message in MyChart) I admitted that I'm in a sort of denial about this. There were no strong findings on the MRI, so no solid direction in which to go next. A spinal tap would be indicated based on MRI findings, that's something LA was interested in knowing about. 

The plan in the end - no plan. I could get more tests, but the balance of a low-yield test vs cost and stress and risk vs benefit -- in my mind let's just wait. Not just because I don't want more tests, but just because I've got enough else going on, and I'm moving away, and there's just nothing specific to go after right now. 

So the plan is to find a neuromuscular specialist in AA, and go from there. I told this to LA, and he suggested CIDP or AIDP or Lyme or Gullian Barre - I think they are mixed up as I typed them. One is acute inflammatory demyelinating polyradiculoneuropathy or chroic IDP - the same kinda says it all. Weakness, numbness, etc. I don't really see myself as having these when I read the symptoms. 

Speaking of which, what are my current symptoms - just as an update? The left side of my face feels odd, like it's bulging out or sagging. The headache I've had seems to be around a clenched-jaw feeling, like I'm clenching my jaw but I never actually catch myself doing it. The pain/clench feeling is in the upper jaw, but on both sides. The other day while where looser soft pants I felt "something" against the anterior left calf, but nothing was there. This lasted the two days I wore the pants. The "something" is an altered sensation against the skin. Numbness? Not sure. Other than  that, no other symptoms I've noted. 

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The Whole30 continues. Last night we went for sushi and I declined, with the recent painfulness so fresh in memory. I'm on track, but not doing "template" and still doing condiments of ketchup, honey mustard, and raspberry vinaigrette. I don't react to them, they work, but I'm using too much and that's the catch. So use 'em up and stop for a bit. 

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LA replied to my summary of the neuro follow up with the above neuro terms, which are autoimmune conditions. This immediately reminded me of the AIP diet. I've looked at it over and over for years, it's right there with Whole30 in most books. It's a branch out of the Paleo diet, and I've been reading on that since 2009. I reviewed the diet, and yes, I'm super close to being on it. I've already stopped dairy, cocoa, legumes, and for the most part nuts and alcohol. The Whole30 I started reduced oats and rice and fake sugars, (excepting said condiments). The foods I'd need to remove include: eggs (!), tomatoes, the condiments, pistachios, mustard, and peppers. Reduce coffee, tea is OK.  That's it!! But EGGS?!?!?!?!?!? Ugh. Oh, and rice and oats for sure. 

So I reserved some library books, read some info, need to read a lot more. Improved sleep and reduced stress and low-medium exercise are also on the AIP plan, same as on the Whole30 and Paleo. What to do?!  AIP is temporary, like Whole30 it requires reintroduction. 

What can I add with this? I should start thinking about adding things back. Apples. Sweet potatoes. Cassava flour. I learned that new-to-me Tigernut flour should be OK. Blackstrap molasses. 

So as always, I set out a remove/replace plan:

REMOVE        REPLACE WITH
Eggs                 Beef and fish
Mustard            ??
Tomatoes         I'll be OK here without, roma and salsa and tomato paste I can wait
Oats                 Remove anyway, tigernut flour stuff?
Rice                 See above
Peppers            I'll be OK here, I just munch the mini peppers right now
Coffee              Reduced anyway
All nuts            Already reduced
Indicated Spices     Already not using spices much

Plan -- look at some recipes and start seeing if the swaps work for me. 


Monday, May 17, 2021

Up and Down. Pass and Fail. Restart. Again.

Wednesday night we drove up to my parents to weigh the trailer.

Thursday midday we drove back afterwards. Then sushi, and I wasn't feeling good before sushi and I certainly felt worse after. I ordered the "spicy tuna" for the first time, and it had tempura on the top. I removed the top, ate what looked like a clean bottom of just rice, but who knows if I exposed to something else in doing so. 

Friday I committed to W30 again. For me it's less the elimination and more the absolute "no" of it. Friday night breakfast was too much veg and butternut and fruit, and dinner was oats and ketchup and shrimp and veg and raspberry dressing ice-cream randomness. Really felt sick. 

Saturday I was still feeling sick from it all when I decided a veg then fruit then M of aven, azuc, ghee would be a good idea. Super sick. As in - back to bed horrified to meditate until I felt better. I drove out to FLW to see LA barely functioning. 

Sunday turned in to at 21hr IF. One the way home from FLW I literally picked up oats at the $ store and put them back, picked up the other oats at $ store and put them back, picked up oats at Aldi and put them back, touched oats at Vincent's and walked away. Later on wanted a piece of caramel candy. Had rice with dinner, too much maybe, but planned and part of dinner and OK. Wanted the almond ice cream later. 

Monday, today, all is good so far. Actually packed a lunch! Breakfast was too big again, still nom'ming too much, but so far so good. 

What a ride. 

Wednesday, May 12, 2021

Last night - Nothing changed, so, nothing changed

 19IF day, all a bunch of CO from yesterday and day before, all great. 

Home with plan that I never looked at again. Was on the phone, stressed, but not rushed, and lost it all.

Aven is now gone, BS now gone, MS and Jell thrown out. 

Nothing will change, if Nothing is changed. 

Tuesday, May 11, 2021

The Monster and The Magnets

Yesterday was the brain MRI. I don't have results yet. This isn't about the results.

I'm not claustrophobic, so I actually enjoyed the time in the machine. I was even disappointed that it lasted only 30 minutes. I had the idea that it would be an hour or more. 

To be put in a white glowing tub, head nestled into a cage that included a plastic face mask and ear phones, a warm blanket. No distractions. Just me, Monster, and Magnets.

Monster comes into the story because just an hour prior he came to the house and I let him in. A sort of WTH moment, a last hurray, a moment of weakness. I came to the MRI with chest pressure and headache and dizziness. Stress. Azuc. And Monster. 

During the MRI, images played in my head. Years ago, today, last year, yesterday. 

A memory would start, the magnets would bang.

A vision would start, the vibrations would disrupt it.

A scanning buzzing would start, and wipe away the visuals.

It was like I couldn't think. 

The buzzing and humming and banging entered my head like a laser, cutting and removing and burning away parts of my brain. In my pseudo-hypnotic state, I could see the cutting that left holes in the brain. Like JBP would say, burning away 95% of thoughts that weren't me and leave that 5% of a husk behind, like a Phoenix burning and resurrecting.

The noises were rhythmic, steady, repetitive. I wondered if there was a podcast or other playable that I could listen to to fall asleep.

Half way through the imaging, I received the dose of Galolinium contrast. I've read that it increases the speed at which protons realign with the magnetic field. Faster realignment means a brighter image. 

In my head, the contrast filled in the holes. Provided a structure to rebuild on. The holes where Monster was could be lined to recover and could be filled in with good thoughts. And I think at this point I might have fallen asleep or really did hypnotize myself. The images were blurry and random and written to the repetitive buzzing and humming all around me. 

Afterwards, my mind took hours to come back full. I skipped buying any more food for dinner. I skipped dinner. I skipped my evening walk. I went to be late, feeling numb and empty. 



Sunday, May 9, 2021

This is going to change, part 2

 OK so last night's upset stomach is faded and now it's a raining morning. I slept poorly (wonder why) and craved LA to cuddle against. That's how this all started, with a friendly cuddle on the floor watching Spaceballs The Movie! I eventually slept, woke up pained gut that emptied itself out like a purge. And now here I am.

I'm leaving soon to drive to see my parents, home! My mind immediately puts this as a catchup day, to recover and balance from yesterday. This forward/backward mentality is like a punishment. 

But I need a catch up day, a clearance, I need to empty out - physically and mentally. On the drive, I'll consider the open doors and problems and things to focus on. I have now only ...mathing...less than 3 weeks before the surgery. 16 days?

I set the goal that Monster will not leave the Wyoming house. Aside from the touches of him last night, he's left the house and followed me but has not been invited in. But last night was like I sent an invite and held him to the foyer. 

The changes I need to make, are in keeping him out of the country, so to speak. 

I need to go. Yesterday I delayed. I wont' do that again today!

Saturday, May 8, 2021

If nothing changes, then nothing changes, part 1

 I'm now 18 days without monster. 

I almost blew it tonight. I almost blew it this morning too. I threw everything out before I left the airbnb, then schemed all day to get it back. After making promises, promises that I know are tricks, I bought it all back and more and almost fell into the trap.

I didn't fall into the trap, but now I'm sitting here feeling sick. Balrog talks to me, I don't want him, but he talks to me. He's easy to fend off. Monster, not so much. 

I SWORE that Monster will NOT leave the Wyoming house with me. HE WILL NOT. But he followed me, he's still there. He will always be there, so long as I leave the door open. 

And in the end, all that scheming was really a way to open the door back up for him. I don't realize that in the moment, in the moment it's all promises and trickery. 

I can sit here now, look back, and see the tricks. 

Well the tricks didn't work. They almost worked. I blerched at the ctop and had a bag and thought about it. Even after it was thrown out, my mind still reaches for it. 

If nothing changes, then nothing changes. 

Not a very deep statement, but one that really strikes me hard on this. So Fucking True. 

If I keep opening the door, he will keep coming in. 

Close the Fucking Door. 

There is no middle ground, no short visit, no letting him hang out on the stoop with an open box, no letting him sit in the truck. No promises. No scheming. 

The scheming stressed me out. I look back now and realize it.

The blerching left me sick, even hours later, and I look back now and realize it.

I didn't leave to visit my family because of this scheming. After the stomach upset and headache and heart pounding and spinny feeling, that's a huge loss for me. That's the pang of regret all around. 

What needs to change? 

The only time we only truly suffer is when our minds disagree with reality

 Tom said this recently, not that I haven't seen it before, but he's where I recently heard it. I almost dislike hearing and reading these things, because it's just a reminder of what I know but don't do.

I've been writing a letter to Tom in my head for weeks. Things I want to say, but I really have nothing to say. There's no question, I think I just feel the need to update him. Update him on what? We cut communications in ... 2017...? Rather, *he* cut communications, for reasons I'm not entirely clear on. I was going through the motions of texting him every wednesday, I'm not sure what I was texting him for at the time, he asked me to. Afterwards, I got the sense of a miscommunication or an expectation that wasn't being met. And being cut off from it was a relief at the time.

He claims to be able to do this - and he can - he can see right through you and into your head. The space between the ears. He just has a way with that. But at the same time, he's harsh. Instead of leading you down a path, he sort of pushes you down it and almost like he just expects you'll catch yourself instead of falling. Is that good, or bad? I dunno. 

But I have the urge to email him again, here on the cusp of change as I move to Michigan. What would I say? 

Dear Tom,

You may remember me from years ago, I'm Melly aka Tracy. I was an endurance athlete going through a lot of mental stuff, and I listened to your podcast as a way to learn to walk your path, to buy the water you sell. In the time since we last emailed, so much has happened! This is sort of an update, along with a congratulations for the 400th episode!

Since last talking to you, I've fallen out of my canoe a few times. This happened day after day, week after week. Briefly, I've had one health issue after another. 2017 left hip surgery. 2018 heart attack. 2019 right hip bone stress fracture. 2020 recovery from 2019. 2021 ankle fracture and neurological symptoms. I have surgery later this month, and an brain MRI on Monday.

Throughout all this, I kept thinking ahead to when I would be able to swim, bike and run again. I stayed positive, focused on gratitude and slowing down to enjoy the moment. But since the heart attacks, I've fallen into a depression of sorts over the delays of recovery. I'm not depressed overall, but depressed about being unable to be active. On the one hand, I'm alive and healthy, I have great doctors and health care, my job has given my time to recover. But yet I'm unhappy, stressed, disappointed at my body. 

And I confess, through most of 2019 and 2020 I couldn't listen to your podcast. I felt like I was failing myself by not being grateful enough and not fixing the space between my ears. I felt like I was failing the Mental Tom, the Tom in my brain that spoke from the podcast speakers. 

I haven't been able to put a finger on *why* I was so disappointed. There wasn't any one thing I did to cause all this damage, it's not like I'm living recklessly and making stupid mistakes. Or maybe I am and I'm in denial. But the recent Cognitive Dissonance episode finally may have put a name to how I'm feeling. 

My identity - from my way of thinking to my clothing, to my home decor and my gear (shoes, bikes, etc), to my friend group and how coworkers and other people know me -- has revolved around my being an endurance athlete. It was the driving force for me to get healthy years ago, to be less reclusive and make friends, to get out and explore the city I'd just moved to. Becoming an athlete changed who I was at the core. I'd found what I thoroughly enjoyed and a way to challenge myself. I became the person I wanted to be. Finally to myself, I was a Somebody. I was proud of myself - I could set a goal race and train and work towards it, overcome doubts and problems, and it wasn't about the race but about the training itself. I didn't care if I won the race, I cared that I tried my best. 

Now I can barely run at all, due to the ankle injury. My bikes have flat tires. The pool is a distant memory. I drive around my city and see memories of where I used to run, used to ride, used to meet friends. I fall asleep and my brain replays trail runs and races and bike rides. My cruel mind will randomly flash back to an event from years ago, like opening a book to a random page for me to read. I enjoy these memories, they were happy times, but at the same time it strikes me to the core to know that those days are maybe gone forever. 

Back to the cognitive dissonance. It's like I'm living two lives - my hopes/dreams vs reality - and both are real but discordant. I'm still that person at the core - I still want to run but all I can do is rest and wait for my surgery in 2.5 weeks. I see another runner or cyclist as I drive to work and in my body I can feel the road because I've biked or run that path so many times myself. I talk to my doctors about procedures and they refer to me as "a high performance athlete", yet I haven't trained in weeks or months. 

I'm going through the stages of grief, mourning the loss of who I used to be. At first it was denial, as I pushed through fatigue and injury to keep being an athlete even after I was injured. Then I was angry, angry at my body for betraying me and angry at my mind for being unable to control things. Then I'm bargaining - if only I can run a little bit, then I'd be happy enough. 

Lately I've fallen into acceptance, a sad acceptance.  A realization that I may never again be an athlete. Why do I think this? I'm young, I'll recover, and I may not be the long course athlete I used to be, but I'll still be an athlete! But no, that's not what my mind is saying. My mind is saying Give Up. Stop. You've Lost. You'll Never Do That Again. Sell The Bikes.

The dissonance of a surgeon saying "your a high performance athlete, I'll do this procedure differently for you" so you can get heal faster.

The dissonance of seeing my beloved bikes parked in the basement with flat tires.

The dissonance of my mind playing a memory of a trail run, while the ache in my ankle and hips that say I may never be strong enough to run a trail again. 

I drive my my favorite park, and I feel a physical pain of loss. As if something has died and I'll never get it back. 

This is all shallow, I know. As you said in the 399 podcast about no straight lines - I haven't been shot or attacked or sick from COVID. My life is pretty good (I haven't even mentioned all the other changes yet!!) so why am I bitching and moaning about this?!

So the dissonance, my question, maybe not really a question that has an answer, is how do I know if I'm giving up because it's the easy thing to do, or if I'm giving up because that's the reality that I need to just accept. 

The quote that "The only time we only truly suffer is when our minds disagree with reality" hit me hard. 

So did: "sometimes you have to let go of the picture of what you thought life would be like and learn to find joy in the story you are actually living".

How do I know?! How do I know what my reality is now? Am I still an athlete who will recover, or am I trying to hang on to the "glory days" I enjoyed so much. Am I giving up and taking the easier road because I'm afraid the work or being disappointed? When will I know to let go, or to keep trying? What if I was trying so hard, too hard, and that's why I accumulated injuries? Does my body have one reality, and my head another? Is this the cause of my suffering? 

How do I sort this out? 

Friday, May 7, 2021

Surgery is schedule for May 27th - 20 days

 Still NOTHING 

I'm not even walking much. In part because my Garmin died yesterday (left the charging cord in MI) and in part because I'm just getting damned depressed with the realization that my last days in STL won't even be in St Louis and won't be mobile at all.

If surgery is the 27th:
May 28-31 with kids
June 1-June 9 recovering in MI
June 9-11 in STL for a 2-week followup.
June 11: My AirBNB ends 
June 12-13 at FLW
June 14-20 with kids
June 20-30 at work another 2 weeks? Or moved to MI?

So many questions, but really most of them are answered. If cardiology and anesthesiology clear me for surgery on the 27th in Chesterfield, LA will be here. If they don't clear me and prefer surgery at Big Barnes, it will be the 25th and I can ask family to help. 

The dog won't need to be boarded, she'll be with us in MI. I don't need to stay with family, LA (I thought I might disrupt his schedule being in MI) will be able to have me at the new house, the job is working out with co-workers schedule, I have a place to stay in STL and IL and MI as needed. Ugh. And as I'm typing the boss emails that it's OK to take surgery on the 27th. 

So far, it's working! 

I'm ignoring the fact that I have the MRI on Monday, really, I expect it to be negative but hopes don't mean anything for this. 

I have a lot to do this weekend - and I want to both go to MI and IL for Mother's Day. I don't know if I can make it work yet. I have mice work to do tomorrow, taxes due in a few days, and I just need rest. But the AirBNB is boring! And unhealthy to be alone so much. I  miss my LA and dog.

OK now back to work, so I can try to travel this weekend!



Wednesday, May 5, 2021

Monster -14d; Balrog - 705d; Unniversary - 5 years

 Lots of big numbers, M number is low but growing. He's my focus right now.

I'm in the AirBNB now since Monday. I'm lonely and it's quiet. I feel hesitant to reach out to anyone, I feel like I'm a problem or a burden or a complainer. So I stay quiet.

Yesterday my goal was to walk am and pm, I did neither. So I didn't get much past 7000 steps. I did however put the Aveen to the truck and skip, threw out the BS I was using, and walked on the way into work this morning. I miss walking with LA and my dog.

I need to schedule or delay my ankle surgery - the dates I have are May 20 or June 10. In LA's words - both shittastic because of our kids and military schedules falling on those days too. In a perfect world, I'd have my family here. But I feel like a burden on them somehow. 

Last night I skipped walking and caught up on letters to LAs kids, the War and Peace (haha, I typed Peach at first) chapter 2, and sketching wolf eyes for Slava. This morning I skipped walking to start sketching on Slava's cat story.

SteveO just called, mentioned family moving to NC. Moving....I can't even think about it....

I'm slowly catching up. My blog is quiet, but so is my training. I'm behind on the kids diary notes, but filling it in. I need to find my friends - TH, TB, etc, BE and EW, and etc, and let them know I'm alive. I put all this off until life got "normal" again.

Well, it's kinda normal, if you count LA and Sugar being in MI, me being in a temporary home, me needing surgery. Ugh. 

Tuesday, May 4, 2021

How's It Going To Be, Monster, when you don't know me anymore?


I'm only pretty sure that I can't take anymore
Before you take a swing
I wonder what are we fightin' for
When I say out loud
I want to get out of this
I wonder is there anything
I'm going to miss
I wonder how it's going to be
When you don't know me
How's it going to be
When you're sure I'm not there
How's it going to be
When there's no one there to talk to
Between you and me
'Cause I don't care
How's it going to be
How's it going to be
Where we used to laugh
There's a shouting match
Sharp as a thumbnail scratch
A silence I can't ignore
Like the hammock by the
Doorway we spent time in swings empty
Don't see lightning like last fall
When it was always about to hit me
I wonder how's it going to be
When it goes down
How's it going to be
When you're not around
How's it going to be
When you found out there was nothing
Between you and me
'Cause I don't care
How's it going to be
And how's it going to be
When you don't know me anymore
And how's it going to be
Want to get myself back in again
The soft dive of oblivion
I want to taste the salt of your skin
The soft dive of oblivion, oblivion
How's it going to be
When you don't know me anymore
How's it going to be
How's it going to be